Last update 8th. July 2004


Patients Fora The Way Forward ... Part 2

While the first paper posted on this site looked at the development of PPIFs and the future of the CPPIH this section deals with the strategic resource already in place and how it will be/should be utilised in future strategic planning for publicly funded health services on a paneuropean basis.

Let me explain, as members of our respective PPIFs we are charged with the combination of oversight and scrutiny and the user/local community shaping of future service delivery. The key driving force, both politically and economically, is social inclusion ... the construction of local delivery networks that reflect demographic need/demographic change both in terms of diversity and projected age gradients.

That capability now needs to be taken to the next stage, beyond KMS, beyond local informal networks and captured in the same way we capture information electronically ... cell by cell by Kb by Kb till we have a whole image. The work we are doing, unfunded/unpaid is a research job, it is a professional job yet it cannot be carried out by professionals in a central governmental/ministerial sense. It needs to be done "at arms' length" by local users and local Community Empowerment Networks so that personal experience/expertise can be matched with local communal experience/expertise whether that be disability/BME/gender/LGBT choice/age or faith based. That experience/expertise is in advance of governmental/ministerial strategic thinking because it is at the grass roots of user/community interface that the NHS theoretically serves.

Step aside for a moment and think in terms of small business development .. a concept becomes reality through local market/customer research, that research is applied in SWAT analysis and by the investment of personal blood, sweat, tears and money. If the research is accurate and the product/service marketed meets local needs and the price meets market capability to purchase then the business survives, if the market/customer research is continuous and accurately assembled/monitored/acted upon then the business grows ... locally, nationally, internationally [think hamburgers, coffee, fairtrade cosmetics].

Now lets put that model within the publicly funded arena and the same strands of assembling/monitoring/acting upon market/customer research should, and must, apply. That is the justification of the PPIF ... but, is that how it's being used?

Let us take our investment, unfunded/unpaid, and offer it beyond local parameters and from pooled knowledge create a thinktank that can be used within the NHS. For this to work we need to build our models, starting with the triboro structure posited within the first paper and building that into a working London Network that combines London SE with London SW, London NE, London NW; four models interlocked that serve as a panuk model for paneuropean solution provision.

We identify the key issues, based on user/CEN research within the following criteria:

  1. Immediate
  2. 1 Year
  3. 5 Year
  4. 10 Year

With the program continuously rolling forward and continuously capable of sustainable growth in terms of shifting demographic, health trend and social exclusion priorities.

This is a cando/mustdo ... and it is a now action that needs to be implemented.

For it to be delivered in terms of London, and thus the rest of the UK, we need allies. These come in three statutory shapes:

  1. The GLA - their health brief has yet to be fully developed, and for it to develop consultation is the key, PPIFs the key resource.
  2. The NAO - A later paper on this web site will look at the needs for audit trails of accountability within subhealth issues, specifically transportation and handling of patients within hospitals; the need for audit within the NHS, and the need to build working models is key to the service's development, PPIFs the key resource.
  3. The DRC - social exclusion starts with disability, it is pandemographic and pandiverse; yet it requires capital investment over mindset for social inclusion of the disabled community to happen, the DRC is the key, PPIFs the key resource.

The joinedupwriting Partnership has already forged key CPPIH/PPIF links within both the GLA and the DRC, it is now seeking to achieve the same within the NAO; but it needs your support, your support in taking the case forward through your own contacts within your CENs, Local Authorities and local/national political networks. We also need something else from you... electronic commitment, along with Nick Green and Mike Reddin, the guys who helped us to get the ball really rolling, we need another ten plus volunteers to form an electronic working group.

Marc Jeffery